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From Compliance to Care: Qualitative Findings from a Survey of Essential Caregivers in Ontario Long-Term Care Homes

Author(s): Conklin J; Dehcheshmeh MM; Archibald D; Elliott J; Hsu A; Kothari A; Stolee P; Sveistrup H;...

Background: The COVID-19 pandemic highlighted the importance of the care provided by family members and close friends to older people living in long-term care (LTC) homes. Our implementation scienc...

Article GUID: 38561989
COVID-19's impact on a community-based physical activity program for adults with moderate-to-severe TBI

Author(s): Quilico EL; Wilkinson S; Bédard E; Duncan LR; Sweet SN; Swaine BR; Colantonio A;

Purpose: Physical activity (PA) is proposed for long-term problems after traumatic brain injury (TBI) with mood, quality of life, and participation. However, COVID-19 mitigation strategies resulted in widespread closures of community-based ...

Article GUID: 37184357
Exploring a peer-based physical activity program in the community for adults with moderate-to-severe traumatic brain injury

Author(s): Quilico E; Sweet S; Duncan L; Wilkinson S; Bonnell K; Alarie C; Swaine B; Colantonio A;

Primary objective: To explore the experiences of program mentors, participants, and employees involved in a peer-based physical activity (PA) program for adults with moderate-to-severe TBI, being piloted by a community fitness center, to de...

Article GUID: 37157834
Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury

Author(s): Quilico E; Wilkinson S; Duncan L; Sweet S; Bédard E; Trudel E; Colantonio A; Swaine B;

Background: Research about using physical activity (PA) to improve health, quality of life, and participation after moderate-to-severe traumatic brain injury (TBI) is receiving growing attention. However, best-practices for maintaining PA p...

Article GUID: 36188895
Title:From Compliance to Care: Qualitative Findings from a Survey of Essential Caregivers in Ontario Long-Term Care Homes
Authors:Conklin J,  Dehcheshmeh MM,  Archibald D,  Elliott J,  Hsu A,  Kothari A,  Stolee P,  Sveistrup H, 
Link:https://pubmed.ncbi.nlm.nih.gov/38561989/
DOI:10.1017/S071498082400014X
Category:
PMID:38561989
Dept Affiliation: AHSC
1 Department of Applied Human Sciences, Concordia University, Montreal, QC, Canada.
2 Bruyère Research Institute, Ottawa, ON, Canada.
3 Department of Family Medicine, University of Ottawa, Ottawa, ON, Canada.
4 School of Public Health Sciences, University of Waterloo, Waterloo, ON, Canada.
5 Western University, London, ON, Canada.
6 Lawson Health Research Institute, London, ON, Canada.
7 School of Health Studies, Western University, London, ON, Canada.
8 School of Rehabilitation Sciences, University of Ottawa, Ottawa, ON, Canada.

Description:

Background: The COVID-19 pandemic highlighted the importance of the care provided by family members and close friends to older people living in long-term care (LTC) homes. Our implementation science team helped three Ontario LTC homes to implement an intervention to allow family members to enter the homes during pandemic lockdowns.

Objective: We used a variety of methods to support the implementation, and this paper reports results from an Ontario-wide survey intended to help us understand the nature of the care provided by family caregivers.

Methods: We administered a survey of essential caregivers in Ontario, and a single open-ended question yielded a substantial qualitative data set that we analysed with a coding and theming procedure that yielded 13 themes.

Findings: The 13 themes reveal deficiencies in Ontario's LTC sector, attempts to cope with the deficiencies, and efforts to influence change and improvement.

Discussion: Our findings indicate that essential caregivers find it necessary to take on vital roles in order to shore up two significant gaps in the current system: they provide psychosocial and emotional (and sometimes even basic) care to residents, and they play a monitoring and advocacy role to compensate for the failings of the current regulatory compliance regime.