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PubMed Publications| Keyword search (4,163 papers available) |  |
"pediatrics" Keyword-tagged Publications:
| Title | Authors | PubMed ID | |
|---|---|---|---|
| 1 | A Fully Virtual Graded Exertion Test Is Safe and Feasible in Symptomatic and Asymptomatic Children With Concussion | Coupal J; Shabanova D; Gagnon I; Grilli L; Beaulieu C; Teel E; | 41816309 SOH |
| 2 | Preexisting Mental Health Disorders Are Associated With Acute Clinical Presentation and Longitudinal Recovery Trajectories in Adolescents With Concussion | Iuliano SG; Gagnon IJ; Iverson GL; Cook NE; Zemek R; Teel EF; | 41505351 SOH |
| 3 | Supporting parent capacity to manage pain in young children with cancer at home: Co-design and usability testing of the PainCaRe app | Jibb LA; Liu W; Stinson JN; Nathan PC; Chartrand J; Alberts NM; Hashemi E; Masama T; Pease HG; Torres LB; Cortes HG; Kuczynski S; Liu S; La H; Fortier MA; | 39473834 CONCORDIA |
| 4 | Adiposity and cardiac autonomic function in children with a family history of obesity | Saade MB; Holden S; Kakinami L; McGrath JJ; Mathieu MÈ; Poirier P; Barnett TA; Beaucage P; Henderson M; | 39304555 PERFORM |
| 5 | Deserve's Got Nothin' to Do With It: A Philosopher Visits the NICU | David I Waddington | 30214922 EDUCATION |
| 6 | Co-Development of Three Dietary Indices to Facilitate Dietary Intake Assessment of Pediatric Crohn's Disease Patients | Harvey A.; Mannette J.; Sigall-Boneh R.; Macintyre B.; Parrott M.; Cahill L.; Connors J.; Otley A.; Haskett J.; van Limbergen J.; Grant S.; | 38634640 PERFORM |
| 7 | Acceptability of Serious Games in Pediatric Asthma Education and Self-management: Pilot Study | Silva-Lavigne N; Valderrama A; Pelaez S; Bransi M; Balli F; Gervais Y; Gaudy T; Tse SM; | 35389354 CONCORDIA |
| 8 | Family Members' Perceptions of Their Psychological Responses One Year Following Pediatric Intensive Care Unit (PICU) Hospitalization: Qualitative Findings From the Caring Intensively Study | Rennick JE; Knox AM; Treherne SC; Dryden-Palmer K; Stremler R; Chambers CT; McRae L; Ho M; Stack DM; Dougherty G; Fudge H; Campbell-Yeo M; | 34557460 CONCORDIA |
| 9 | Validation of a Portable Game Controller to Assess Peak Expiratory Flow Against Conventional Spirometry in Children: Cross-sectional Study. | Chelabi K, Balli F, Bransi M, Gervais Y, Marthe C, Tse SM | 33512326 CONCORDIA |
| 10 | Pain in long-term survivors of childhood cancer: A systematic review of the current state of knowledge and a call to action from the Children's Oncology Group. | Schulte FSM, Patton M, Alberts NM, Kunin-Batson A, Olson-Bullis BA, Forbes C, Russell KB, Neville A, Heathcote LC, Karlson CW, Racine NM, Charnock C, Hocking MC, Banerjee P, Tutelman PR, Noel M, Krull KR | 33112416 PSYCHOLOGY |
| Title: | Supporting parent capacity to manage pain in young children with cancer at home: Co-design and usability testing of the PainCaRe app | ||||
| Authors: | Jibb LA, Liu W, Stinson JN, Nathan PC, Chartrand J, Alberts NM, Hashemi E, Masama T, Pease HG, Torres LB, Cortes HG, Kuczynski S, Liu S, La H, Fortier MA | ||||
| Link: | https://pubmed.ncbi.nlm.nih.gov/39473834/ | ||||
| DOI: | 10.1002/pne2.12097 | ||||
| Publication: | Paediatric & neonatal pain | ||||
| Keywords: | cancer; co‐; design; mHealth; pain; parents; pediatrics; | ||||
| PMID: | 39473834 | Category: | Date Added: | 2024-10-30 | |
| Dept Affiliation: |
CONCORDIA
1 University of Toronto Toronto Ontario Canada. 2 Hospital for Sick Children Toronto Ontario Canada. 3 Faculty of Health Sciences McMaster University Hamilton Ontario Canada. 4 Faculty of Health Sciences University of Ottawa Ottawa Ontario Canada. 5 Children's Hospital of Eastern Ontario Ottawa Ontario Canada. 6 Concordia University Montreal Quebec Canada. 7 University of California Irvine Irvine California USA. 8 CHOC Children's Hospital Orange California USA. 9 UCI Center on Stress and Health Orange California USA. 10 Ontario Parents Advocating for Children with Cancer Toronto Ontario Canada. 11 University of Victoria Victoria British Columbia Canada. 12 Pathverse Inc. Victoria British Columbia Canada. |
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Description: |
Young children receiving outpatient cancer care are vulnerable to undermanaged pain. App-based solutions that provide pain treatment advice to parents in real-time and in all environments may improve access to quality pain care. We used a parent co-design approach involving iterative rounds of user testing and software modification to develop a usable Pain Caregiver Resource (PainCaRe) real-time pediatric cancer pain management app. Parents of children (2-11 years) with cancer completed three standardized modules using a PainCaRe prototype. App usability and acceptability were evaluated using the validated System Usability Scale and a thematic analysis of app testing sessions and interviews. Iterative testing sessions were conducted until data saturation. Interview themes were synthesized into action items that guided revisions to PainCaRe and additional testing rounds were conducted as necessary. Twenty-two parents participated in three testing cycles. Overall, parents described PainCaRe as an acceptable and potentially clinically useful pain management tool. Mean system usability scores were in the acceptable scale range during each testing cycle. Usability issues identified and resolved included those related to software malfunction, complicated app navigation logic, lack of clarity on pain assessment questions, and the need for pain management advice specifically tailored to child developmental stage. Using co-design methods, the PainCaRe cancer pain management app was successfully refined for its acceptability and utility to parents. Next steps will include a PainCaRe pilot study before evaluating the impact of the app on younger children's pain outcomes in a randomized controlled trial. |
